Data Governance Manager for the Terry Fox Research Institute, Canada
Canadian lawyer and legal researcher, serving as the Data Governance Manager for the Terry Fox Research Institute. In this role, he develops policy to support the uptake of precision medicine by and responsible data sharing between Canada’s leading cancer centers. Adrian has assisted numerous cross-border data sharing initiatives with ethical and legal issues, including the EU 1+ Million Genomes Initiative and the Global Alliance for Genomics and Health (GA4GH). Previously, he has held senior researcher positions at the Luxembourg Centre for Systems Biomedicine at the University of Luxembourg, and the Centre of Genomics and Policy at McGill University.
CONTACT
Website: www.tfri.ca
LinkedIn: Adrian Thorogood